Cure 4 Rhys

Jack Hagelin
Rest in Peace
September 4, 2002 -
March 27, 2007


	Links ANDY BRANDON CAMERON CONNER COOPER GIOVANNI JACK JACKSON JACOB KEITH SAMUEL SIMON

Rhys sitting on James Hooks knee:

Rhys with Jiffy Davies:

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Cure 4 Rhys!

The Nemo Group

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The Strength of the family is within the Child. And the Strength of the Child is within the Family.

When Rhys is in hospital for long bouts of time, the family has to be split up his brother Morgan is shipped to his grandparents and I have to work... Not good for the family well being. I gave up work to be with everyone, but it is difficult as we still have the bills and mortgage to pay. The Charity will be set up to help others in our position to help with the nitty gritty of daily life.. Holidays to Disney Land etc will be fantastic but I believe the home and family need to be able to rally around without having to many worries. So no matter what happens this is what the charity will focus on and no matter what the world will be a better place for having Rhys.

Kevin Harris

What is NEMO?
NEMO is the name of a gene that regulates functions of the immune system.
NEMO is like a "master switch" that is found on the cell of the human body and regulates signals between the cell membrane and the cell nucleus. NEMO is expressed in almost all tissue cells. If NEMO is not present life is not possible. NEMO stands for Nuclear Factor Kappa B Essential Modulator.
Nuclear Factor Kappa B or NFKB is the name of the protein that is used for communication between the membrane and the nucleus. NEMO is known to be the pathway of skin, skeleton, blood vessel and other vital signals. For example, the EDA gene is known to dictate properties of the "ectoderm" or last layer of the skin. The EDA gene uses the NEMO pathway to the nucleus to make the "ectoderm" properties present.

What is ECTODERMAL DYSPLASIA?
The ectoderm is the outer layer of the skin, sweat glands, hair, teeth and nails. Ectodermal dysplasia (ED) is a heritable disorder that affects the ectoderm, the outer layer of tissue in a developing baby. ED syndromes affect both males and females of all races and ethnic groups. The ectoderm contributes to the formation of many parts of the body, including the skin, sweat glands, hair, teeth, and nails. During embryonic development, these and/or other parts of the baby’s body, including the lens of the eye, parts of the inner ear, the fingers and toes, or nerves, among others, may fail to develop normally.